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Lucinda Ritchie has Ehlers-Danlos syndrome, a condition that affects the joints; functional neurological disorder, which impacts her mobility; Addison's disease, a hormonal disorder; and epilepsy. She was studying for a Master's in sustainability at Southampton University, as well as acting as a charity ambassador and keynote speaker. #DisabilityAwareness #EDS #SouthamptonUniversity #Sussex #BBCNews
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I want it to stop — not just the seizures, but the way epilepsy steals pieces of my family every single day. It’s not fair. Why am I stuck with a disease that causes relentless epileptic seizures? Why do my children have to witness this? When my husband is trying to save me, he asks Halston to help Payson, and that’s when my heart shatters. It’s not her job to help her little sister. It’s not her job to distract her while mom is seizing and dad is making sure I’m still breathing — while he’s inj
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This disease is a monster. Children with dravet syndrome need a cure. #warning #seizure #dravetsyndrome #monster #elilepsy #awareness #fyp #foryou #foryourpage #💔 #dravetsyndromeneversleeps
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